Autism is a neuro-developmental disorder that results in social, communication and behavioral challenges. In the United States, the current rate of diagnosis is 1 in 68 children and 1 in 42 boys. Boys are 4-5 times more likely to be diagnosed. Every individual with autism is unique with different strengths and challenges. It is commonly said, “when you meet a person with autism, you have met one person with autism”. Individuals with autism can also have some amazing skills and talents.
Many children with autism have sensory challenges that make certain sights, sounds, smells, foods and clothes very unpleasant or unbearable for them. Behavior is a form of communication. When you see a child with autism struggling, it is often due to a sensory or other trigger combined with the challenge and frustration of them not being able to communicate their needs or feelings. Some individuals with autism may not be able to use their voice to speak or may not look at you when you talk to them but they can understand what you are saying.
The Children’s Guild Foundation Autism Center at the John R. Oishei Children’s Hospital provides a multidisciplinary evaluation for up to 460 individuals a year who may have autism. Each child receives a developmental, neurological and psychological evaluation. Additionally, the Center has partnered with Parent Network of Western New York and many community cultural organizations to provide families with Autism Spectrum Disorders and other challenges with information, support and opportunities to connect and have fun with other families. All of our activities are meant for the enjoyment of the whole family. We have seen first hand the positive benefits of the support and family friendships that have grown through our parent groups and family activities.
Donations from this run will be used in a variety of ways through “Au-Some Activities” to benefit families with Autism. For example, they may be used to provide supplies for art projects and activities, snacks, rental expenses, noise muffling headphones, games for game group, etc. and other items to make the experiences more comfortable for families with autism.
Listening to parents and collaborating with community partners are key in making activities more accessible to all families with autism, sensory or physical challenges. Although we have several new initiatives in development, some of our ongoing collaborations and events include the following:
- BPO Kids – Exceptional Kids with the Buffalo Philharmonic Orchestra
- Au-Some Aquarium monthly events at the Aquarium of Niagara Falls
- Sensory Friendly performances at the Theatre of Youth
- Au-Some Evenings monthly events at Explore & More Children’s Museum
- A-List Summer Directory of opportunities for families with Autism and other differences
- Groups for parents of Children with Autism; Teens with Aspergers and parents of teens transitioning out of high school
- We also do several smaller events and activities for families in WNY
We do our best to negotiate family friendly rates and keep costs down but there are always some expenses we do not have grants or sponsorships for. We sincerely appreciate any and all support.
Thank you so much for your for interest!
To make a donation directly to the Parent Networks Au-Some activities fund please visit: https://parentnetworkwny.org/ausome-activities/
If you have any questions or would like additional information, please contact: Jana Mertz, MBA; Program Coordinator of The Children’s Guild Foundation Autism Spectrum Disorder Center at the John R. Oishei Children’s Hospital firstname.lastname@example.org or 716-323-6435.
President Ronal Reagan proclaimed October as National Pregnancy and Infant Loss Awareness Month in 1988, making October a month of particular significance for early infant death. Approximately 1 in 4 pregnancies end in a perinatal loss, and it is a tragedy that impacts people from all regions and all walks of life. Throughout the nation, parents, family members, friends and healthcare professionals gather to pay tribute to approximately 870,000 babies who die each year due to perinatal death. This month is observed with remembrance ceremonies, candle-lighting vigils, and events that not only allows families to come together to remember their babies, it also promotes awareness about the pain of infant loss and the effect it has on families.
The WNYPBN provides bereavement support as well as referral and linkage services directly to families through support groups, memorial events, in-hospital bereavement programs, and community/professional education about perinatal loss. The Wings of Love Memorial Fund provides financial assistance for burial costs to ease some of the unexpected financial burden placed on grieving families during the tragic loss of their baby.
Since the inception of the Memorial Fund in September of 2007, the program has assisted our bereaved community with over $60,000.00 in financial assistance to bury their baby. The funds are used to purchase infant urns, caskets, and cemetery plots, as well as to pay cremation fees, burial fees, and funeral home expenses. Additionally, through Wings of Love, the WNYPBN has established Memorial Gardens throughout the Western New York region. These gardens provide a place of solace and memorialization for bereaved families.
For more information about the WNYPBN and its programs and services, visit our website at www.wnypbn.org. If you have any questions, please contact us at 716-626-6363.
Amount Raised: $1,650
The Upstate New York Chapter was founded to serve the needs of those living with Amyotrophic Lateral Sclerosis and their caregivers. The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. The ALS Association covers all the bases — research, patient and community services, public education, and advocacy — in providing help and hope to those facing the disease. The ALS Association (National Office and the Upstate New York Chapter) operates under a shared mission: to help people living with Amyotrophic Lateral Sclerosis and their families, and to leave no stone unturned in search for the cure. We work together to accomplish our mission. The Upstate New York Chapter focuses primarily on helping local patients and families live with ALS through comprehensive patient service programs, while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials.
To learn more about the Foundation please visit: http://webuny.alsa.org/site/PageServer?pagename=UNY_2_about_our_chapter
To donate directly to the ALS Asscociation please visit: https://secure2.convio.net/alsa/site/Donation2;jsessionid=00000000.app277b?36582.donation=form1&df_id=36582&mfc_pref=T&NONCE_TOKEN=8A18A58665B2910E5CF54ED590C5903B
If you own a business and want to host an event that benefits the ALS Association Upstate NY chapter please contact: Kristin Schneider email@example.com
Amount Donated: $700
Our mission is to improve the quality of life for the Parkinson’s community throughout Western New York.
Our outreach includes support, educational, therapeutic and social programs and events. We provide services for Parkinsonians and caregivers. Our successful fundraising efforts are allowing us to institute new programs in dance, singing, yoga and meditation, all very therapeutic, and we now have a highly successful boxing program for Parkinsonians in WNY. We are widely recognized for innovation, as our PD Ice Skating Party is the only one of its kind in the country, possibly the world, and our PD Ski program at Holiday Valley, the Parkinson’s Powder Busters, begins in 2017.
To learn more about NPFWNY please visit http://npfwny.org/
To donate directly to NPFWNY please visit http://npfwny.org/donate/
If you own a Business and want to host an event that benefits NPFWNY please contact firstname.lastname@example.org
Amount Donated $600
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